Ballet Teacher Awaiting Double Lung Transplant - FOX 35 News Orlando

Ballet Teacher Awaiting Double Lung Transplant

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When we arrive at Robyn Dekeyser's home, we come face to face with her new reality. A truck carrying oxygen tanks is parked in her driveway.

The 42-year-old wife and mother who's been battling cystic fibrosis since birth just went on oxygen. She tells, she was hesitant to go on the oxygen, because she knew it would make her less mobile than she planned to be.

It's a stunning change from when we first met Robyn a few months ago. She was unbelievably still teaching ballet classes at her studio in Brevard County with a lung capacity of less than 30 percent. She was once a professional ballerina herself.

But now, Robyn's lung capacity has dropped to 19 percent. The situation is desperate, and she needs a double lung transplant.

Robyn tell us, "I can't go on another two months and dip another 10 percent. People don't live with that kind of oxygen saturation. Ironically, from what I've been told, it's been one of the slowest years for transplants being able to get donors. That makes me nervous."

Her husband Steve tells us wistfully, "So many aspects of our body that can be used to make someone else's life happier -- that can actually extend their life."

Steve is grateful for Facebook's recent addition of organ donor to its members' status, and in fact, according to Donate Life Florida, the number of donors signing up daily in the state of Florida has since nearly quadrupled, from 100 to nearly 400.

But for the DeKeyser's, that will remain a mere statistic until that call comes.

Steve says, "I'm always worrying about when we're going to get the call. When we getting that call for a new set of lungs? It's always in the back of your mind."

Robyn tells us, "I don't know who it's going to be, but I already wrote a letter to them to thank them. I can't thank them enough! I just want to tell them thank you already. I know it's hard for their family. You don't know how precious my life is to me and how much I still want to do with it."

Four-thousand people in the state of Florida are waiting for life-saving organ transplants. According to Donate Life Florida, only 1,600 will most likely get that transplant within a year.

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