2 Kids Suffering From Rare Disease Approved For Treatment - FOX 35 News Orlando

2 Kids Suffering From Rare Disease Admitted Into Gene Therapy Study

Posted: Updated:

Two kids who suffer from a rare disease that attacks the brain, nerves and muscles have been admitted into a gene therapy study that was considered to be their best hope.

FOX 29 introduced you to seven-year-old Eli and four-year-old Ella in October. The two, who are from the same family, were diagnosed with Metachromatic Leukodystrophy, also known as MLD.

A gene therapy study in Milan, Italy was their best chance.

On Friday, FOX 29 learned the two were admitted into the study. The family tells us their treatment is scheduled to begin in May.

  • Local NewsMore>>

  • Man Dies Following Parachute Jump In South Jersey

    Man Dies Following Parachute Jump In South Jersey

    Monday, April 21 2014 7:19 AM EDT2014-04-21 11:19:43 GMT
    A parachute jump goes terribly wrong in South Jersey. A skydiver dies after what police describe as a problem with his wingsuit.
    A parachute jump goes terribly wrong in South Jersey. A skydiver dies after what police describe as a problem with his wingsuit.
  • Student Sexually Assaulted At West Chester University

    Student Sexually Assaulted At West Chester University

    Student Sexually Assaulted At West Chester University

    Monday, April 21 2014 7:18 AM EDT2014-04-21 11:18:39 GMT
    Students and parents are on edge after a sexual assault was reported to the University Department of Public Safety on Saturday, April 19th at 2:28 a.m.According to campus police, the assault occurred in a residence on campus. Police say the victim did not know the attacker."It's kind of scary because obviously it shouldn't be happening," student Kate Luff said. "There's security guards so I mean they had to have gotten signed in or lived in the building."Other studentsare just as shocked."Tha...
    Students and parents are on edge after a sexual assault was reported to the University Department of Public Safety on Saturday, April 19th at 2:28 a.m.According to campus police, the assault occurred in a residence on campus. Police say the victim did not know the attacker."It's kind of scary because obviously it shouldn't be happening," student Kate Luff said. "There's security guards so I mean they had to have gotten signed in or lived in the building."Other studentsare just as shocked."Tha...
  • One Year After Marathon Bombings, Runners Return To Boston

    One Year After Marathon Bombings, Runners Return To Boston

    Monday, April 21 2014 7:01 AM EDT2014-04-21 11:01:22 GMT
    One year after the explosions, 36,000 runners return to Boston. See how the city is securing the site.
    One year after the explosions, 36,000 runners return to Boston. See how the city is securing the site.
Powered by WorldNow

35 Skyline Drive
Lake Mary, FL 32746

Phone: (407) 644-3535
News Tips: (866) 55-FOX35

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices