Mom who lost two kids to rare disease receives Christmas gifts - FOX 35 News Orlando

Mom who lost two kids to rare disease receives Christmas gifts

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ORLANDO, Fla. (WOFL FOX 35 ORLANDO) -

With funerals for two of her four young children to pay for, Felecia Peete didn't plan to provide gifts for the surviving siblings.

But in an act of Christmas kindness, an anonymous donor stepped up and paid off one of the funerals. Then, several organizations donated presents for the remaining kids.

"It was a miracle, I'm saying it was a miracle because they paid the whole thing off," said Peete of the funeral. "A miracle that hit home on Christmas day. That's why it was so touching to me.

"I'm not use to accepting help. I'm the one used to doing it."

Peete adopted four of six siblings in 2010 who were in the foster system after their mother gave them up.

Shortly after, Peete was shocked to learn they all had a rare, deadly disease called adrenoleukodystrophy, which progressively damages the white matter of the brain. The 1992 movie "Lorenzo's Oil," starring Susan Sarandon and Nick Nolte was the true story of a couple trying to find a cure for their son's ALD.

One of Peete's surviving sons, Tyveon Jones, 6, takes medicine every hour to stay alive.

The disease has taken the lives of Tyveon's older brothers, 10-year-old Tyler and 9-year-old Tyjuan.

"It was devastating because none of us has still gotten over it," Peete said.

Doctors are now monitoring Tyveon and his 7-year-old sister, Tyanna.

Peete decided to adopt the kids because they were her nephew's children, and she wanted to give them a loving home.

However, in order to take care of Tyveon, she had to quit her job.

"With his schedule of medicines, I'm not able to work, so that's the only thing right now. The finances have really dwindled down to zip," Peete said.

Peete believes God has been her strength, even when she started losing faith.

"I was mad at him for a while because he took my two boys away, but then again, it's like they weren't mine. They were on loan to me, and God needed them back."

Now, as she struggles to pay rent and other bills, the gifts she's received for Christmas have given her renewed hope for the future.

"I just do it one day at a time. I do believe in God, and he does for me what I can't do myself."

To help the Peete family, contact Kristi Gray at DCF at 407-317-7042 or email Kristin_Gray@dcf.state.fl.us.

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