Teen battling rare disease may soon leave hospital - FOX 35 News Orlando

Teen battling rare disease may soon leave hospital

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A Florida teenager who is battling a rare disease could be going home from the hospital after spending most of the year there --  well over 200 days. 

The 14-year-old has been battling MyloDisplastic Syndrome, a precursor to leukemia.   He had a bone marrow transplant in July of last year and 14 surgeries and procedures since.

"You know, surgery is not a big deal," says Theo Menswar.  "They just wheel me over, and I know all the doctors by name by now."

Theo is nonchalant about what has been going on.

"I know I've been pretty close to biting the dust, but I really didn't know about it until afterwards," he says.

In fact, he spent weeks in the intensive care unit in a comatose state.

"I guess it happened, and I'm still here, so I guess that's a sign."

FOX 35 shared his story with you last month.  Doctors diagnosed him with graft versus host disease, meaning his body was rejecting the donated bone marrow.  He contracted a deadly virus at the same time. The cure for one negated the cure for the other.

His uncle posted a video on YouTube, which drew the attention of doctors around the country who came forward with ideas for treatment.

Doctors now say that, barring any unforeseen setbacks, Theo should be going home on May 6.

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