Valley baby struggles with liver disorder, may need transplant - FOX 35 News Orlando

Valley baby struggles with rare liver disorder, may need transplant

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PHOENIX -

A nearly 2-month-old baby is struggling with a rare liver disorder that's never been seen before at Phoenix Children's Hospital.

The baby is now headed to a children's hospital in L. A. where she may have to get a liver transplant.

"We're each other's rock. I have to be strong for her," said Princess Rivera, the baby's mother.

Princess Rivera has been at her daughter's bedside since she was admitted to Phoenix Children's Hospital after developing jaundice.

She was just 2-weeks-old.

It's very overwhelming. I've never had to deal with anything like this," said Rivera.

Doctors found the baby, named Reyna, was struggling with a rare liver disorder that's never been seen before at Phoenix Children's Hospital.

"She was actually born with liver cirrhosis which is complete scaring of the liver and liver failure and now has evolving liver masses which are very concerning for cancer," said Dr. Tamir Miloh, with Phoenix Children's Hospital. "Her condition may require a liver transplantation."

While the doctors are caring for baby Reyna, they have seen similar conditions with children other places, but they've never seen this exact condition before. She's being sent to the children's hospital in L. A. for a second opinion.

"L. A. children's is a specialized center that has dealt with similar conditions before," said Miloh.

If Reyna is in need of a liver transplant, she will be put on a transplant list.

"Any patient gets a score on how sick...since Reyna is in liver failure, she will receive a very high score and be at the top of the list," said Miloh.

Another option is for a family member to donate part of their liver, Rivera says someone has already expressed interest in doing that.

Insurance will cover the transplant, if needed, but Rivera is unemployed.

Her family has set up a bank account to help with medical and other expenses for the baby and her family as they now head to L. A.

"Everybody's here, they're close to me and it's just going to be hard to go," said Rivera.

Despite her condition, baby Reyna's still very active, her mother says, smiling and making everyone laugh.

"It's just hard to see her go through all of this," said Rivera.

To make donations to the Rivera family for expenses:
Chase bank (under Reyna Rivera)
Account #3032184800

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